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Epilepsy Surgery Service

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Resources

There are many sources of support for those with a diagnosis of epilepsy who may be considering surgery.

Telephone advice

JR Epilepsy Advice Line: 01865 234222

The nurse is not always in the office, but answerphone messages are checked daily and we will call you back as soon possible - include your name and contact telephone number.

Assistance post-surgery

JR Switchboard: 0300 304 7777 - ask to Bleep the Neurosurgical Registrar on call.

National helplines

Epilepsy Action: 0808 800 5050

Epilepsy Society: 01494 601400

Young Epilepsy: 01342 831342

Websites

Information and support

Research

Epilepsy Research UK

Oxford Epilepsy Research Group

Epilepsy care

Overview | Epilepsies in children, young people and adults | Guidance | NICE

Getting the right treatment and care for your epilepsy in England and Wales

Managing epilepsy

Epilepsy safety - SUDEP Action

Using Seizure Diaries - Epilepsy Foundation

Cognition / language difficulties

For people experiencing memory or language difficulties e.g. word findings.

Apps for Aphasia - Neuro Hero

A collection of apps designed by speech and language therapists to help people with word finding difficulties. Cues help people to name the image. The introductory app is free but additional apps incur a cost.

Memory and mood

Memory problems and epilepsy - Epilepsy Action

Links between epilepsy and mood - Epilepsy Society

Wellbeing

Epilepsy and your wellbeing

This course aims to teach you how to take simple steps to manage your epilepsy and improve your wellbeing. It covers the links between epilepsy and your wellbeing, seizure triggers, taking epilepsy medication, memory and stress.

Last reviewed:08 October 2024