ILD self-management

Lifestyle management

• Eat a healthy diet and take regular exercise - visit Here for Health for advice and support
• Stop smoking - visit Smoking Cessation
• Stay up to date with vaccinations
• Manage breathlessness using specific techniques
• Join a Support Group

For more information please visit:

Live Well - NHS website

Breathlessness management

There are a number of physical techniques you can use to manage breathlessness. If appropriate, Oramorph can be prescribed to manage breathlessness.

Videos

• Breathlessness management - Karen parsons
• Oramorph for breathlessness management - Karen Parsons
• Tips for breathlessness - NHS video
• Breathlessness - helpful techniques - Oxford Health video
  

Pulse oximetry

Your healthcare provider may give you a device called a pulse oximeter to use at home to monitor your oxygen saturation levels.

Home spirometry

Home spirometry was introduced in 2020 during the COVID-19 pandemic, to allow patients to carry out spirometry in their own homes.

Home monitoring for patients with lung diseases during COVID-19 - March 2021

If appropriate, we may offer you a home spirometry device. You will take readings at home and upload them to an app. (You will need a suitable device and internet connection). We will let you know how often to take readings.

Videos

• An introduction to spirometry theory - Dr Emily Fraser
• Having a spirometry test in clinic - Shakila Hussain
• Home spirometry set-up - Carmine Ruggiero

Action for Pulmonary Fibrosis magazine

The Action for Pulmonary Fibrosis 'Insider' magazine is packed with free information to help you live well and manage your condition. It contains topics such as support, personal stories, fundraising, research and treatment.

Use the link below to register for the magazine (either as a hard copy or digital version).

APF Insider magazine