Research

Many of our haematology specialists are national and international leaders for research studies in haematology. This means that we can offer our patients the opportunity to take part in research studies if they wish.

We encourage you to ask your doctor or nurse about research participation. However, you do not have to take part in research if you do not wish to. If you decide not to take part, this will not affect your care in any way.

Types of research

Research into the biology of blood disorders

This refers to research that looks at cells and tissues but does not relate to treatment. You might be asked for permission to use some of your cells or samples for this kind of research.

Late phase clinical trials

Late phase clinical trials compare new drugs, or new ways to use existing drugs, with standard treatment. Sometimes late phase trials test other things, such as new scans, new blood tests or supportive care.

Usually, people who take part in late phase trials are put into different groups at random. You don't get to choose what group you are in.

We may ask if you would like to join a clinical trial as part of your treatment. Taking part in a trial does not mean that you will automatically have a new treatment. You might have the same treatment as you would have if you were not taking part in a trial.

Early phase clinical trials

All drugs require a lot of testing before they can be given to patients. Early phase clinical trials test treatments that are very new. Sometimes these are new drugs that have not been given to humans before.

Early phase research is not suitable for most people. These trials are offered to people who have already had other standard treatments for their condition.

For more information about early phase trials, please visit the website for the Early Phase Clinical Trials Unit (EPCTU), Department of Oncology, Medical Sciences Division, University of Oxford:

Early Phase Clinical Trials Unit (EPCTU)

Taking part in research

Taking part in research might mean taking part in a trial or donating tissue. Research is very important for the future of haematology. It can lead to new treatments, new tests and better results for future patients.

You do not have to take part if you don't want to. You can say no, and it will not affect your care in any way. You can also withdraw from a clinical trial if you wish.

Your doctor will give you information about the clinical trial and what is involved. You may also speak to a research nurse who can provide more information.

You will have the opportunity to ask questions about the trial, and make sure you understand it fully, before deciding.

Ask about the alternatives to taking part in research. Ask about the practical side of taking part, and whether it involves any additional tests or visits to hospital.