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Oxford ILD Support Group

Many people face a challenging time when they are diagnosed or are living with a lung condition.

Trying to understand the condition, and what it will mean, can be difficult. Often people feel isolated, overwhelmed and in need of further information and help to best support them.

Oxford ILD Support Group offers the opportunity to meet others who understand what you are going through and get further information and advice to help improve your quality of life and make a positive difference.

The group is open to anyone affected by pulmonary fibrosis, whether a patient, family member, carer or friend: everyone is welcome.

Meetings

At our meetings, we aim to:

  • provide a friendly atmosphere where you can meet others with a similar condition and share experiences
  • provide access to relevant information / news / talks / signposting
  • provide emotional support and help develop coping skills/techniques
  • help promote feelings of empowerment and control over your disease
  • support you to live better with ILD and make positive lifestyle changes
  • advise on physical and mental wellbeing.

Our members look forward to a friendly supportive chat and an opportunity to catch up with others. At each session we aim to have a speaker on topics of relevance such as:

  • breathlessness management
  • research trials
  • oxygen therapy
  • diet.

There is ample opportunity to ask questions and discuss issues of concern. Specialist staff are sometimes available for information and advice. We also arrange informal social events from time to time and other interactive activities.

Oxford meetings

Meeting location

Sandford on Thames Village Hall
Henley Road
Oxford OX4 4YN

Oxford meeting dates 2024

Meetings are held every two months on a Thursday 10.00am - 12noon:

  • Thursday 6 June 2024 - ILD and Travel
  • Thursday 1 August 2024 - Research Talk
  • Thursday 3 October 2024 - Overview of Government Benefits
  • Thursday 5 December 2024 - Christmas Get-together

Remote access via MS Teams

If you cannot make it to an Oxford meeting, please join us online.

You will need access to MS Teams via a PC, laptop, tablet or smartphone and a good internet connection.

For joining instructions and the link for our next meeting please contact us.

Banbury meetings

Meeting location

Waitrose Community Room
Southam Road
Banbury OX16 2FW

Banbury meeting dates 2024

Meetings are held every two months on a Wednesday 2.00pm - 4.00pm:

  • Wednesday 3 July 2024 - ILD and Travel
  • Wednesday 4 September 2024 - Talk by Action for Pulmonary Fibrosis
  • Wednesday 6 November 2024 - Tai Chi

Parking

There is a time limit on parking in the Waitrose carpark - tell Customer Services your registration on arrival.

On arrival

Register in the book at the Welcome Desk before going to the Community Room.

Refreshments

Unfortunately we cannot provide hot drinks. If you have a Waitrose card and a reusable cup, you can get a hot drink from the machine at the Welcome Desk courtesy of Waitrose - or you can purchase one from the café to bring with you.

Contact us

Email: oxford.ild@ouh.nhs.uk

Last reviewed:04 June 2024